BTA Tinnitus Manifesto

MPs from the UK’s three biggest political parties have joined a leading charity to call for more funding for research into tinnitus – the perception of noise in the ear/head – after new research showed the huge strain the common condition places on mental health.

The ‘Time to Listen’ research, published today by the British Tinnitus Association (BTA), reveals that one in five people with tinnitus think about it “every few minutes”, it can be as loud as a jet engine, whistling kettle or dentist’s drill and, for one in seven (15%), it can lead to suicidal thoughts.

The MPs – Sir John Hayes (Conservative), Lilian Greenwood (Labour) and Tommy Sheppard (SNP) – agreed to work together following the BTA’s recent Tinnitus Roundtable event at the House of Commons in January 2020, where they met with leading academics, research-funders, clinicians and people with tinnitus to agree the way forward for curing the condition, which affects one in eight people in the UK.

Studies show that tinnitus research receives a staggering 40 times less funding than conditions like depression, anxiety and hearing loss, although the impact on the individual is comparable – and one researcher at the roundtable reported that they received just £30,000 over four years for their tinnitus study.

The Time to Listen survey of 1,620 people with tinnitus revealed that many with the condition experience low mood and sadness (57%) and avoid contact with friends, taking part in fewer social activities (42%). A third say that their condition is often trivialised by their partner, family, friends, work colleagues and health professionals, and more than eight out of 10 are dissatisfied with the current treatment options.

One in four (28%), say that a cure for tinnitus would “completely change” their life and 98% say it would make their life better.

Marking the launch of Tinnitus Week 2020 (3rd to 9th February), the BTA produced ‘The Tinnitus Manifesto’, which calls for:

• 1% of the health service cost of treating tinnitus to be spent on research to find cures – a total of £7.5m per year to be dedicated to research
• An improved academic infrastructure to be put in place to enable better quality research and a higher volume of studies, building on the work of the committed research community
• A focus on studies that will help establish the key foundational knowledge for tinnitus research, and enable the community to move forward to find cures

David Stockdale, Chief Executive of the British Tinnitus Association, an independent charity and the primary source of information for people with tinnitus, said: “It is a travesty that tinnitus – with its huge mental health impact – receives 40 times less funding than comparable conditions.

“Yet our committed research community has made great strides in recent years to bring us to the edge of major progress. We need to seize this opportunity by making the investment needed to grow the field and make the huge leaps forward that are so important to people with tinnitus.

“These calls, made at the start of Tinnitus Week, are informed by discussions with researchers, funders, clinicians and people with tinnitus and they are supported by politicians from across the political spectrum. It’s time for the Government to listen up and invest in tinnitus to help improve mental health and quality of life for millions of people.”

Sir John Hayes, Conservative MP for South Holland and the Deepings, who urged the Secretary of State for Health to commit more funding to tinnitus research following the Tinnitus Roundtable event, which he hosted, said: “I’ve had tinnitus since suffering a serious head injury in my 20s. It can have a huge impact on people’s lives and yet the underfunding of research has left big gaps in scientific knowledge. I am urging the Health and Social Care Secretary to commit more funding to this important cause and working alongside other MPs like Lilian and Tommy to make that happen.”

Lilian Greenwood, MP for Nottingham South and Vice-Chair of the APPG on Deafness in the last Parliament said: “It’s staggering that a condition affecting more than seven million people in the UK – and that can have such a big impact on mental health and quality of life – has been so neglected. Tinnitus affects wellbeing, relationships and careers and yet we still know so little about it. It’s vital that as politicians we work together to secure the funding and infrastructure changes needed to progress towards finding a cure.”

Tommy Sheppard, SNP MP for Edinburgh East, added: “I’m delighted to be supporting these calls to Government. Tinnitus has a huge impact on mental health and it’s time we invested in finding a cure.”

Download the Tinnitus Manifesto here

Sign the petition to commit more funding to tinnitus research at Change.org here